Guide to Selected Publicly Available Sleep-Related Data Resources

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PDF (40 pp.)

National Institutes of Health
National Heart, Lung, and Blood Institute
National Center on Sleep Disorders Research

Table of Contents
Introduction.................................................................................................................................. 1
Methodology.............................................................................................................................. 3
Key to Summary Matrix Coding ................................................................................................ 4
Summary Matrix of Sleep Questionnaires.................................................................................. 4
Population-Based Studies ........................................................................................................... 5
Selected Large-Sample Sleep Studies......................................................................................... 6
Sleep Scales and Questionnaires................................................................................................. 6
I. Population-Based Studies ......................................................................................................... 7
A. American Time Use Survey Questionnaire ........................................................................... 9
B. Behavioral Risk Factor Surveillance System State Questionnaire ...................................... 10
C. CDC Pregnancy Risk Assessment Monitoring System 1999 Surveillance Report.............. 11
D. Fatality Analysis Reporting System..................................................................................... 11
E. Framingham Heart Study ..................................................................................................... 12
F. Global School-Based Survey 2004 Core Questionnaire....................................................... 13
G. National Asthma Survey, 2003 ............................................................................................ 13
H. National Comorbidity Survey, 1990–1992 .......................................................................... 14
I. National Health Interview Survey, 2002 ............................................................................... 15
J. National Health and Nutrition Examination Survey ............................................................. 16
K. National Household Survey on Drug Abuse........................................................................ 17
L. National Sleep Foundation, Sleep in America Poll.............................................................. 18
M. National Survey of Children’s Health, 2003....................................................................... 19
N. National Survey of Early Childhood Health........................................................................ 19
O. Nurses’ Health Study ........................................................................................................... 20
P. United Nations General Social Survey, Cycle 12: Time Use............................................... 21
Q. U.S. Department of Labor, Bureau of Labor Statistics: National Longitudinal Surveys .... 22
R. Department of Veterans Affairs Databases.......................................................................... 22
S. National Hospital Discharge Survey .................................................................................... 23
T. National Vital Statistics System........................................................................................... 23
U. Women’s Health Initiative................................................................................................... 24
V. Sleep Heart Health Study (SHHS)....................................................................................... 25
W. National Ambulatory Medical Care Survey........................................................................ 26
II. Selected Large-Sample Sleep Studies................................................................................... 27
A. Corporate British Health Questionnaire............................................................................... 29
B. Chronic Fatigue Syndrome and Sleep Assessment.............................................................. 29
C. Daytime Sleepiness and Hyperactive Children.................................................................... 30
D. Nursing Home Quality Initiative.......................................................................................... 30
E. Older Adults and Arthritis.................................................................................................... 31
F. Pediatric Sleep Medicine Survey.......................................................................................... 31
G. Reduction in Tinnitus Severity ............................................................................................ 32
III. Sleep Scales and Questionnaires ......................................................................................... 33
A. A.P.N.E.A. Net: The Apnea Patient’s News, Education & Awareness Network—Sleep
Apnea Questionnaire............................................................................................................ 35
B. Epworth Sleepiness Scale .................................................................................................... 35
C. Exempla Healthcare Sleep Disorders Laboratory: Patient Education and Screening
Questionnaire ....................................................................................................................... 35
D. Infant Screening Questionnaire............................................................................................ 35
E. Leeds Sleep Evaluation Questionnaire................................................................................. 35
F. Maternal Child Supervision Questionnaire, 1961 ................................................................ 36
G. Parental Interactive Bedtime Behavior Scale ...................................................................... 36
H. Pediatric Sleep Questionnaire .............................................................................................. 36
I. Sinai Hospital Sleep Disorder Assessment Questionnaire .................................................... 36
J. Sleep Apnea—The Phantom of the Night Questionnaire ..................................................... 36
K. Pittsburgh Sleep Quality Index ............................................................................................ 36
L. Stanford Sleepiness Scale..................................................................................................... 36
M. Functional Outcomes of Sleep Questionnaire..................................................................... 36

Appendices
Appendix I. Relevant Questions From Population-Based Studies
Appendix II. Relevant Questions From Selected Large-Sample Sleep Studies
Appendix III. Relevant Questions From Sleep Scales and Questionnaires
Appendix IV. Quick Links to Population-Based Studies, Questions from Large-Sample Sleep Studies,
Questions From Sleep Scales and Questionnaires